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9th International Cystinosis Congress in Valencia, Spain - 30 June - 03 July 2016

at the beautiful Barcelo Valencia Hotel. This conference is the largest and most diverse gathering of Cystinosis patients, their families and experts in the world. The opportunities to make lifelong friends abound and the latest updates in Cystinosis research will be presented by the medical experts. The Barcelo is taking reservations please use the CODE 52691 for the room discounts. Conference Information and Registration: Click Here

Conference Agenda: Click Here


Would you like to participate in the next Cystinosis Clinic at UCSD/ Rady Children's Hospital in San Diego, Ca?


To schedule appointments, patients should call Crystal at 619-543-7800



Delayed-release capsules - oral therapy for vital organs
- learn more -


CYSTARAN™ The treatment of Corneal Crystals in Cystinosis Patients

 -learn more -


         What Is Cystinosis?

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          A Guide for Parents, Patients,
          and Healthcare Professionals: (5 MB PDF)
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The Pediatric Neurology Research Group at the University of California, San Diego (UCSD) is conducting a research study on "Outcome and Quality of Life in Adults with Cystinosis"

The Study involves an online questionnaire, and is looking for two groups of participants.

More Information »



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