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2014 International Cystinosis Congress Beyond Borders in Manchester, UK


We are honored to have Graham Lipkin, MD, serve as our Conference Chair. Save the Date: July 24-26, 2014 for the 8th International Cystinosis Congress at the Marriott Renaissance Hotel City Centre in Manchester, United Kingdom. Please click the link below, and create an account to Register for the conference.


Conference Website & Registration




Sigma-Tau Pharmaceuticals Launches Cystaran For The Treatment of Corneal Cystine Crystal Accumulation in Patients With Cystinosis.

Learn More about Cystaran


         What Is Cystinosis?

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          A Guide for Parents, Patients,
          and Healthcare Professionals: (5 MB PDF)
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Cystinosis: an Artists Inspiration

Oceans Of Life

Read more about Lee Knaus



The Pediatric Neurology Research Group at the University of California, San Diego (UCSD) is conducting a research study on "Outcome and Quality of Life in Adults with Cystinosis"

The Study involves an online questionnaire, and is looking for two groups of participants.

More Information »



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