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2014 International Cystinosis Congress Great Success in Manchester, UK


We were honored to have Graham Lipkin, MD, serve as Conference Chair, for the 8th International Cystinosis, held July 24-26, 2014 Congress was at the Marriott Renaissance Hotel City Centre in Manchester, United Kingdom. The Congress was a huge success, with families from all over the world attending. We will announce the next Internation Conference very soon. Stay Tuned






Sigma-Tau Pharmaceuticals Launches Cystaran For The Treatment of Corneal Cystine Crystal Accumulation in Patients With Cystinosis.

Learn More about Cystaran


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Cystinosis: an Artists Inspiration

Oceans Of Life

Read more about Lee Knaus



The Pediatric Neurology Research Group at the University of California, San Diego (UCSD) is conducting a research study on "Outcome and Quality of Life in Adults with Cystinosis"

The Study involves an online questionnaire, and is looking for two groups of participants.

More Information »



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