More information on the Venue, Agenda and Prices will be announced very soon.
Any questions can be directed to the Cystinosis Foundation email address Email@cystinosis.com
INTERNATIONAL REGISTRY
Congratulations to Mikaela Gard
Delayed-Release Cysteamine Phase 3 Clinical Study Concludes
Raptor has completed its phase 3 clinical study of DR Cysteamine in cystinosis patients, with the last enrolled patients completing the protocol in early June, 2011.
The study, which was conducted at 9 clinical sites in the US and Europe...
Diagnosed in Russia
The Cystinosis Foundation has been working with Dr. Mikhail Kagan, M.D. of the Orenburg Regional Children's Hopsital in Orenburg, Russia.
Together we're helping to diagnose more children that may have Cystinosis and get information out to other hospitals and doctors throughout Russia.
Embassy of Venezuela in France donates medicine to children with chronic illness
Solidarity and humanism are principles the Embassy of the Bolivarian Republic of Venezuela in France puts into practice to achieve the negotiation for sale of medicine to mitigate the result of one congenital illness called Infantile Nephropathy Cystinosis...
