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ANNOUNCING THE 2008 INTERNATIONAL CYSTINOSIS CONFERENCE

 
27 & 28 June 2008
HILTON DUBLIN CITY HOTEL
DUBLIN, IRELAND

Click Here For Information and Registration
Program Update March 6th

 

 

Orphan-Europe has put together an excellent "Guide" for Parents, Patients, and Healthcare Professionals.


Cystinosis Patient Brochure

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Last Update: May 07, 2008

  On behalf of  Sigma Tau
      Pharmaceuticals Inc.

We are pleased to announce availability of the newly approved Carnitor(R) SF (Levocarnitine) Sugar-Free Oral Solution for patients with Carnitine Deficiency. 
 Click here to read the news

Richard and Mary Jordan and their son Joey were featured on the Discovery Channel's new series "Mystery Diagnosis".

Click Here to see the Video

EGORD
Egyptian Group for Orphan Renal Diseases
EGORD is a national health group that was established in April 2003. It is the only group of its kind in Egypt .
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ÓCathasaigh TV Appearance


Mack Maxwell shares his Workout Program
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2008 International Cystinosis 
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