CYSTINOSIS FOUNDATION HOMEPAGE

France

Australia

Mexico

604 Vernon Street, Oakland, CA 94610 1-800-392-8458
501 (C) (3) Charitable Organization

Ireland

Netherlands

Germany

Bennu's DR Cysteamine product candidate is an improved oral formulation of cysteamine bitartrate. Bennu's formulation will potentially require less frequent dosing and reduce gastrointestinal side effects. To learn more about DR Cysteamine and Bennu
Click Here

ANNOUNCING THE 2008 INTERNATIONAL CYSTINOSIS CONFERENCE

27 & 28 June 2008
HILTON DUBLIN CITY HOTEL
DUBLIN, IRELAND

Summary and Pictures will be coming soon!!

Orphan-Europe has put together an excellent "Guide" for Parents, Patients, and Healthcare Professionals.

Cystinosis Patient Brochure

English Turkish
Spanish Arabic Dutch

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We are updating our Mailing Lists and Email Lists, there are a number of email addresses that have changed and have not been updated in our records. If you just would like us to send emails, leave off your postal address, if you prefer postal mail, leave off you email address. Thank You Click Here!.

Last Update: August 03, 2008

On behalf of Sigma Tau
Pharmaceuticals Inc.

We are pleased to announce availability of the newly approved Carnitor(R) SF (Levocarnitine) Sugar-Free Oral Solution for patients with Carnitine Deficiency.
Click here to read the news

Richard and Mary Jordan and their son Joey were featured on the Discovery Channel's new series "Mystery Diagnosis".

Click Here to see the Video

EGORD
Egyptian Group for Orphan Renal Diseases
EGORD is a national health group that was established in April 2003. It is the only group of its kind in

Egypt