eMedicine - Profile on Cystinosis |
Gene Clincis Profile on Cystinosis Genetic Alliance Alliance for Genetic Support Groups |
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Exception Parent Magazine |
ORPHANET |
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http://www.rarediseases.org/ |
http://specialchild.com |
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Lauren's
Hope |
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N-Style ID Social Security & Disability Resource Center |

This page is a work in progress!
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"THE
CYSTINOSIS BOOK" A DAY IN THE LIFE OF SHAWN: Shawn Reuter Click Here |
Cysteamine Eye Drop Development |
Scoliosis In Cystinosis |
| Nephropathic Cystinosis A Guide for Parents, Patients and Healthcare Professionals |
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| Cysteamine Therapy in Post-Transplant Cystinosis | BOOK
REVIEWS By Teri Schleuder |
| Rickets and the Kidneys | Why do Cystinoic's
Drink so Much English Espanol |
| How is the Kidney Affected in Cystinosis | Self-help/personal growth books |
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THE EVALUATION AND TREATMENT OF
GASTROINTESTINAL DISEASE IN CHILDREN WITH CYSTINOSIS RECEIVING
CYSTEAMINE |
CRYSTAL CLEAR |
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Follow-up and treatment of adults with cystinosis in the
Netherlands - By: Elena
Levtchenko |
Russian Medical Journal Articles |