Library &Resources

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Resources    |   Library

RESOURCES


eMedicine - Profile on Cystinosis
GeneClinics Logo
Gene Clincis Profile on Cystinosis

Genetic Alliance
Alliance for Genetic Support Groups

Exception Parent Magazine

ORPHANET

http://www.rarediseases.org/

http://specialchild.com

Ågrenska . . . . .
A Unique Centre of Knowledge


CVS CareMark Pharmacy
Your pharmacy source for Cystagon® capsules


Orphan Europe
Orphan Europe distributes Cystagon
throughout Europe and the Middle East.

Lauren's Hope
Lauren's Hope specializes in Medical ID Bracelets. From 14k Gold and Diamond Bracelets to Medical ID Watches.
http://www.laurenshope.com/


Gift Of Life
Gift Of Life Donor Program for those in the Eastern Pennsylvania, Delaware, Southern New Jersey area.


DEANNA LYNN POTTS SCHOLARSHIP
Children with cystinosis are living longer, thanks to medical science and therefore, embarking on careers. These careers require education. Education is expensive, yet something we do not want to deprive our children of in our world today. Due to the financially draining medical costs, it might prove difficult to send a child to college. Through this fund, we hope to help some of those students. A $1000 scholarship awarded annually.
Click Here for Eligibility and how to get an application.


HealingWell
Inforamtion and Rescoures for Diseases, 
Disorders, and Chronic Illness

 

N-Style ID
Medical ID's as Jewlery

Social Security & Disability Resource Center
http://www.ssdrc.com/

 


This page is a work in progress!

 

 

LIBRARY


Coronary Artery and Other 
Vascular Calcifications  in Patients 
with Cystinosis after Kidney Transplantation
Click Here

"THE CYSTINOSIS BOOK"
A DAY IN THE LIFE OF SHAWN:
Shawn Reuter
Click Here
 

Cysteamine Eye Drop Development 
Scoliosis In Cystinosis

 
Article on Cystinosis

Nephropathic Cystinosis
A Guide for Parents, Patients and Healthcare Professionals
Cysteamine Therapy in Post-Transplant Cystinosis BOOK REVIEWS
By Teri Schleuder
Rickets and the Kidneys Why do Cystinoic's Drink so Much
English  Espanol
How is the Kidney Affected in Cystinosis Self-help/personal growth books

THE EVALUATION AND TREATMENT OF GASTROINTESTINAL DISEASE IN CHILDREN WITH CYSTINOSIS RECEIVING CYSTEAMINE
Publish August 2003 - The Journal of Pediatrics 
pdf format

CRYSTAL CLEAR
An article written by Al and Seandradh Ó Cathasaigh from Ireland on the necessity and success of using the Eye Drops

Crystal Clear 
also
Eye Drop Clearance Schedule
pdf format

Follow-up and treatment of adults with cystinosis in the Netherlands - By:   Elena Levtchenko
Publications from Dr. Levtchenko:
Urinary Protein Excretion Pattern
Halitosis in Cystinotic Patients
Evaluation of the Proximal Tubular function

Russian Medical Journal Articles
In Russian

Cystinosis Article

Newspaper Article (see page 9)

 

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